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Sökning: LAR1:lu > Röda Korsets Högskola

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  • af Sandeberg, Margareta, et al. (författare)
  • Psychometric properties of the DISABKIDS Chronic Generic Module (DCGM-37) when used in children undergoing treatment for cancer
  • 2010
  • Ingår i: Health and Quality of Life Outcomes. - BioMed Central. - 1477-7525. ; 8
  • Tidskriftsartikel (refereegranskat)abstract
    • Background: The aim was to evaluate data quality and psychometric properties of an instrument for measurement of health-related quality of life: DISABKIDS Chronic Generic Module (DCGM-37) used in school-aged children with cancer. Methods: All school-children diagnosed with cancer in Sweden during a two-and-a-half year period were invited to participate in the study. Analysis was performed on combined data from two assessments, two and-a-half and five months after start of cancer treatment (n = 170). The instrument was examined with respect to feasibility, data quality, reliability and construct and criterion-based validity. Results: Missing items per dimension ranged from 0 to 5.3 percent, with a majority below three percent. Cronbach's alpha values exceeded 0.70 for all dimensions. There was support for the suggested groupings of items into dimensions for all but six of the 36 items of the DCGM-37 included in this study. The instrument discriminated satisfactorily between diagnoses reflecting treatment burden. Conclusions: The results indicate satisfactory data quality and reliability of the DCGM-37 when used in children undergoing treatment for cancer. Evaluation of construct validity showed generally acceptable results, although not entirely supporting the suggested dimensionality. Continued psychometric evaluation in a larger sample of children during and after treatment for cancer is recommended.
  • Bennet, Louise, et al. (författare)
  • Clinical appearance of erythema migrans caused by Borrelia afzelii and Borrelia garinii - effect of the patient's sex.
  • 2006
  • Ingår i: Wiener Klinische Wochenschrift. - Springer. - 1613-7671. ; 118:17-18, s. 531-537
  • Tidskriftsartikel (refereegranskat)abstract
    • Aim: The aim in this survey was to study the clinical characteristics of infections caused by Borrelia genospecies in patients with erythema migrans where Borrelial origin was confirmed by polymerase chain reaction. The aim was also to study factors influencing the clinical appearance of erythema migrans. Methods: The study was conducted in southern Sweden from May 2001 to December 2003 on patients 18 years and older attending with erythema migrans at outpatient clinics. All erythema migrans were verified by polymerase chain reaction, photographed and categorized into “annular” or “non-annular” lesions. A logistic regression model was used to analyze relations between the appearance of the erythema migrans (i.e., annular or non-annular) and factors that influenced its clinical appearances. Results: A total of 118 patients, 54 women (45.8%) and 64 men (54.2%), fulfilled the inclusion criteria. Of these patients, 74% were infected by B. afzelii, 26% by B. garinii ( p < 0.001). A total of 45% (38/85) of the erythema migrans were annular, 46% (39/85) were non-annular and 9.4% (8/85) were atypical. For men infected by B. afzelii the odds ratio of developing non-annular erythema migrans was 0.09 (95% CI: 0.03 - 0.33) in comparison with women with the same infection. Conclusions: In this prospective study of a large series of erythema migrans, where infecting genospecies were confirmed by polymerase chain reaction, the sex of patients infected with B. afzelii had a strong influence on the appearance of the rash. Patients infected by B. garinii more often had non-annular erythema migrans and a more virulent infection with more individuals presenting with fever, raised levels of C-reactive protein and seroreactivity in the convalescence sera.
  • Bennet, Louise, et al. (författare)
  • Effect of gender on clinical and epidemiologic features of Lyme borreliosis.
  • 2007
  • Ingår i: Vector Borne and Zoonotic Diseases. - Mary Ann Liebert, Inc.. - 1557-7759. ; 7:1, s. 34-41
  • Tidskriftsartikel (refereegranskat)abstract
    • The aim is to highlight the influence of patients' gender on Lyme borreliosis and especially erythema migrans (EM), focusing on exposure to tick bites, epidemiology, and the clinical picture. All studies were conducted in the county of Blekinge, located in southeastern Sweden. A prospective study was conducted in 235 individuals (women, n = 110; men, n = 125) engaged in recreational or occupational activities focusing on exposure to tick bites. A retrospective epidemiologic study evaluating 123,495 electronic patients' records (women, n = 61,712; men, n = 61,783) and a prospective clinical study including 118 patients (women, n = 54; men, n = 64) 18 years or older seeking care for EM >= 5 cm in diameter with genospecies verified by polymerase chain reaction (PCR) were conducted. Women 40 years or older had a 48% higher risk than men 40 years or older and 42% higher risk than women younger than 40 years of attracting tick bites (0.0188 versus 0.0127 and 0.0188 versus 0.0132 tick bites respectively per hour). Additionally they had a 96% higher risk than men younger than 40 years of attracting tick bites (0.0188 versus 0.0096). The annual incidence rate of EM in women was 506 and in men 423 cases per 100,000 inhabitants (p < 0.001). Significant differences in incidence rates occurred in those 40 years or older. Odds ratios for males infected with Borrelia afzelii developing nonannular EM were 0.09 (95% confidence interval [CI] 0.03 to 0.33) in comparison to females infected by Borrelia afzeli. Significant gender differences in the risk of contracting tick bites, incidence rates, and clinical picture of EM have been observed. Exposure to tick bites alone may not explain these observations and further studies need to be done to clarify the biologic, immunologic, and sociological mechanisms causing these differences.
  • Berglund, Johan, et al. (författare)
  • 5-y Follow-up study of patients with neuroborreliosis.
  • 2002
  • Ingår i: Scandinavian Journal of Infectious Diseases. - Informa Healthcare. - 1651-1980. ; 34:6, s. 421-425
  • Tidskriftsartikel (refereegranskat)abstract
    • The objective of this follow-up study was to determine the long-term outcome of strictly classified cases of neuroborreliosis treated with antibiotics. A 1-y prospective population-based survey of Lyme borreliosis was conducted in southern Sweden between 1992 and 1993. A total of 349 identified cases with suspected neuroborreliosis were followed up 5 y later. Medical records were reviewed and all participants filled in a questionnaire. Of those patients classified with definite neuroborreliosis, 114/130 completed the follow-up, of whom 111 had completed the initial antibiotic treatment. Of the 114 patients followed up, 86 (75%) had recovered completely and 70 (61%) had recovered within 6 months. Residual neurological symptoms, such as facial palsy, concentration disorder, paresthesia and/or neuropathy, were reported by 28/114 patients. No significant differences between different antibiotic treatments were observed in terms of the occurrence of sequelae. To conclude, we found that 25% (95% confidence interval 17-33%) of the patients suffered from residual neurological symptoms 5 y post-treatment. However, the clinical outcome of treated neuroborreliosis is favorable as only 14/114 (12%) patients had sequelae that influenced their daily activities post-treatment. Early diagnosis and treatment would seem to be of great importance in order to avoid such sequelae.
  • Burström, Åsa, et al. (författare)
  • Adolescents with congenital heart disease their opinions about the preparation for transfer to adult care.
  • 2017
  • Ingår i: European Journal of Pediatrics. - 0340-6199. ; 176:7, s. 881-889
  • Tidskriftsartikel (refereegranskat)abstract
    • The aim of the study was to explore what adolescents with congenital heart disease (CHD) view as important in the preparation for the transfer to adult care. We performed interviews in four focus groups with adolescents (14-18 years old) at four university hospitals in Sweden. Data was analysed using qualitative content analysis. The analysis revealed one main category; Becoming a manager of the condition and four subcategories; Sufficient knowledge about the health, Be a participant in the care, Parental support, and Communicate with others about the health. The adolescents' ages differentiated the discussion in the groups. The older adolescents seemed to have more interest in transition planning, information and transfer. The younger described more frustrations about communication and handling the disease.CONCLUSION: To become a manager of the CHD in daily life, the adolescents want disease specific knowledge, which should be communicated in a developmentally appropriate way. Adolescents want to participate and be involved in the transition process. They need support and guidance in how to communicate their CHD. Parental support is fundamental but it change over time. Moreover, peer-support is becoming more significant during the transition process.What is Known:• Transition during adolescence and transfer to adult care for adolescents with CHD is complex, and there is a shift in roles.• Adolescents often have poor knowledge and understanding about their heart condition and the consequences.What is New:• Adolescents call for disease specific information regarding health issues of importance for them in daily life.• Communicating the disease with other is a challenge- peer support from other adolescents with CHD could be a facilitator.
  • Coradeschi, Silvia, et al. (författare)
  • GiraffPlus : A System for Monitoring Activities and Physiological Parameters and Promoting Social Interaction for Elderly
  • 2014
  • Ingår i: Human-Computer Systems Interaction : Backgrounds and Applications 3. - Springer. - 978-3-319-08490-9 - 978-3-319-08491-6 ; s. 261-271
  • Bokkapitel (övrigt vetenskapligt)abstract
    • This chapter presents a telehealth system called GiraffPlus supporting independent living of elderly in their own home. GiraffPlus system is a complex system which monitors activities and physiological parameters in the home using a network of sensors. The elaborated information is presented to the primary user, the elderly, and to secondary users like health care and home care providers and possibly to family members as a help to assess possible health and wellbeing deterioration, provide acute alarms, and support health procedure. The secondary users can also visit the elderly via the Giraff, a teleoperated robot that can communicate and move in the home under the control of the secondary user. The chapter focusses in particular on the deployment of the system in six real homes in Sweden, Italy and Spain. The chapter outlines the technological various components used, the expectations of the users and the evaluation method.
  • Essen, Anna, et al. (författare)
  • Laggards as Innovators? Old Users as Designers of New Services & Service Systems.
  • 2011
  • Ingår i: International Journal of Design. - Chinese Institute of Design.. - 1994-036X. ; 5:3, s. 89-98
  • Tidskriftsartikel (refereegranskat)abstract
    • Involving users in the design process is increasingly discussed as the quickest and most reliable way to capture the needs of users and consumers. In parallel, the fastest growing population segment in Asia and the West is older people. This article asks whether their involvement in the design process could accelerate a growing service market and if so, how? It addresses a knowledge gap that constrains service provision for a growing market of older people and which underestimates older people's potential contribution in the early phases of the development of new services. The current role of older users is limited to that of test persons later in the design process or as objects of randomized samples that explore consumers' reactions to existing products. The present case study provides an empirical example of how old users can be involved in the early stages of service design. In doing this, the article questions the concept of old users as laggards. It suggests great potential to include such users - been arounds - as sources of innovation in the earlier phases of the design process if they have the right tools and opportunities to act. In identifying unsatisfied needs and potential market solutions, the inclusion of old users in user-driven projects can contribute to the generation of business ideas.
  • Frennert, Susanne, et al. (författare)
  • Capturing seniors' requirements for assistive robots by the use of attention cards
  • 2012
  • Ingår i: NordiCHI '12 Proceedings of the 7th Nordic Conference on Human-Computer Interaction : Making Sense Through Design. - New York : ACM Press. - 9781450314824 ; s. 783-784
  • Konferensbidrag (refereegranskat)abstract
    • Abstract in Undetermined In this paper we describe and reflect upon a novel methodology using attention cards to facilitate communication, concentration and creativity in a user requirement workshop with seniors. Previous research indicates that seniors tend to lose focus and start cross talking during workshops, which results in broad and shallow findings. However, our findings indicate that the use of attention cards helps the seniors to stay focused by visualizing concrete first person narrative scenarios. The results suggest that the framework of the workshop encourage focused attention, positive feelings and openness to new things as well as generating narrow, rich and deep findings.
  • Frennert, Susanne, et al. (författare)
  • Elderly People's Perceptions of a Telehealthcare System: Relative Advantage, Compatibility, Complexity and Observability
  • 2013
  • Ingår i: Journal of Technology in Human Services. - Taylor & Francis. - 1522-8835. ; 31:3, s. 218-237
  • Tidskriftsartikel (refereegranskat)abstract
    • The use of telehealthcare systems to promote independent living for elderly people is growing. The results presented in this article, derived from an initial user lab test of a telecare system—GiraffPlus—indicate that the crucial factor for adoption of telehealthcare systems is not usability but the system's ability to support autonomy in everyday life. Eleven users tested the usability and reported what they perceived as possible benefits of having such a system at home. To support autonomy, customization is crucial for the system to be perceived as meaningful for the individual. Our analysis confirms previous research.
  • Frennert, Susanne, et al. (författare)
  • Older People,s Involvement in the Development of a social assistive Robot
  • 2013
  • Ingår i: Lecture Notes in Computer Science. - Springer. ; 8239, s. 8-18
  • Konferensbidrag (refereegranskat)abstract
    • The introduction of social assistive robots is a promising approach to enable a growing number of elderly people to continue to live in their own homes as long as possible. Older people are often an excluded group in product development; however this age group is the fastest growing segment in most developed societies. We present a participatory design approach as a methodology to create a dialogue with older people in order to understand the values embodied in robots. We present the results of designing and deploying three participatory workshops and implementing a subsequent robot mock-up study. The results indicate that robot mock-ups can be used as a tool to broaden the knowledge-base of the users’ personal goals and device needs in a variety of ways, including supporting age-related changes, supporting social interaction and regarding robot aesthetic. Concerns that robots may foster inactivity and laziness as well as loss of human contact were repeatedly raised and must be addressed in the development of assistive domestic robots.
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