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Sökning: onr:"swepub:oai:lup.lub.lu.se:90b7ad59-39e1-4813-89f8-dc134b486f3c" > Communication and T...

Communication and Trust in the Care Provided to a Dying Parent: A Nationwide Study of Cancer-Bereaved Youths.

Bylund Grenklo, Tove (författare)
Kreicbergs, Ulrika, (författare)
Sophiahemmet Högskola
Valdimarsdóttir, Unnur A (författare)
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Nyberg, Tommy (författare)
Steineck, Gunnar (författare)
Fürst, Carl Johan (författare)
Grenklo, TB, (författare)
Karolinska Institutet, Department of Oncology-Pathology
Valdimarsdottir, UA, (författare)
Karolinska Institutet, Department of Medical Epidemiology and Biostatistics
Furst, CJ (författare)
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Sophiahemmet Högskola (creator_code:org_t)
Lunds universitet Onkologi och Patologi, MV. (creator_code:org_t)
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Göteborgs universitet Sahlgrenska akademin. Institutionen för kliniska vetenskaper, sektionen för onkologi, radiofysik, radiologi och urologi, Avdelningen för onkologi. 
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2013
Engelska.
Ingår i: Journal of Clinical Oncology. - American Society of Clinical Oncology. - 1527-7755.
  • Tidskriftsartikel (refereegranskat)
Abstract Ämnesord
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  • PURPOSETo assess children's trust in the care provided to a dying parent during the final week of life in relation to end-of-life medical information about disease, treatment, and death. METHODSThis nationwide population-based survey included 622 (73%) of 851 youths who, 6 to 9 years earlier, at age 13 to 16 years, lost a parent to cancer. We asked about the children's reception of end-of-life professional information and trust in the care provided. We also asked about depression and several potential risk factors of distrust in the care provided.ResultsA majority (82%) reported moderate/very much trust in the care provided. Compared with children who received end-of-life medical information before their loss, the risk of distrust in the care provided was higher in those who received no information (risk ratio [RR], 2.5; 95% CI, 1.5 to 4.1), in those who only received information afterward (RR, 3.2; 95% CI, 1.7 to 5.9), and in those who did not know or remember if end-of-life medical information was provided (RR, 1.7; 95% CI, 1.1 to 2.5). Those reporting distrust in the care provided had an RR of 2.3 (95% CI, 1.5 to 3.5) for depression. Furthermore, the risk of distrust in the care provided was higher among children reporting poor efforts to cure (RR, 5.1; 95% CI, 3.6 to 7.3), and/or a poor relationship with the surviving parent (RR, 2.9; 95% CI, 2.0 to 4.1). CONCLUSIONOur study suggests that children's trust in the care provided to a dying parent was highest when they received end-of-life medical information before their loss.

Ämnesord

MEDICIN OCH HÄLSOVETENSKAP  -- Hälsovetenskaper -- Omvårdnad (hsv//swe)
MEDICAL AND HEALTH SCIENCES  -- Health Sciences -- Nursing (hsv//eng)
MEDICIN OCH HÄLSOVETENSKAP  -- Klinisk medicin -- Cancer och onkologi (hsv//swe)
MEDICAL AND HEALTH SCIENCES  -- Clinical Medicine -- Cancer and Oncology (hsv//eng)
SAMHÄLLSVETENSKAP  -- Sociologi -- Socialpsykologi (hsv//swe)
SOCIAL SCIENCES  -- Sociology -- Social Psychology (hsv//eng)
MEDICIN OCH HÄLSOVETENSKAP  -- Annan medicin och hälsovetenskap -- Övrig annan medicin och hälsovetenskap (hsv//swe)
MEDICAL AND HEALTH SCIENCES  -- Other Medical Sciences -- Other Medical Sciences not elsewhere specified (hsv//eng)
SAMHÄLLSVETENSKAP  -- Psykologi (hsv//swe)
SOCIAL SCIENCES  -- Psychology (hsv//eng)

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